Tuesday, August 17, 2010
So, this is sobering....
Rick has went for a treatment already last week. The next one is Monday, the 23rd. Both boys will be going that day as well to get their blood tested for this as well. I'm sitting here thinking the worst that could happen is that one of them could have it. We will deal. Then it hit me.....Rick was left absolutely ZAPPED of energy for days afterwards. Imagine what taking that much blood from a kid would do then. I'm putting the cart before the horse here. But please pray neither child has this. It could literally change everything. With school and soccer starting a week later after the testing, this so would change....everything--like would we even let whatever child had this even PLAY soccer? Praying to God to ease my over-thinking mind and worried heart.. Thanks.....
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I am so lost... so did Rick test positive for this thing then? And what is it called again?
ReplyDeleteYes, it is called hematomacrosis...too much iron in the blood. Too much iron (ferritin) can lead to life threatening diseases, and cancer. There are immediate symptoms, most all Rick does have and within the first transfusion, I'm noticing a difference for the better already. He is lucky in that he only has to go once every two weeks for now. I hear a lot of people first diagnosed having to go weekly. Ferritin levels should be no more than 50...Rick's were in the 5,000s. And lucky us, he has the hereditary kind. So not only do the boys have to get tested, but his siblings are urged to go and we honestly think Rick's dad did have it and no doctor ever picked up on it. AND, we think he could have avoided liver cancer had he known. Rick's dad years back was diagnosed with colon and liver cancer. He only "beat" the colon cancer. Liver diseases and cancer are as awful as it gets. So for pain now, we can save lots of pain later.
ReplyDeleteOh and I'm advised to get tested, being the mother of a possible candidate for it. Fun stuff.
You should get tested, my daughter in-law who made sure we got tested because our son had it never was until now, she is a carrier like myself. A carrier means you can pass it on but will not have it, we just found out our 18month old grandson has it and are waiting for the results on his brother. The earlier you find out the better, a blood test won't hurt you, watching them get it is harder. You have to get the DNA test done also.
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